The APBD community joined the National Organization for Rare Disorders and rare disease communities around the world to celebrate Rare Disease Day on February 29th. Leading up to the day, we urged our community to wear zebra-striped sunglasses  and proudly display their support for research progress, while also encouraging them to share their APBD dreams. 

Rare Disease Day is a global movement to raise awareness and generate change for the 400 million people living with over 10,000 rare diseases.

Rare Disease Day is a time for our community to come together in a collective display of support for raising awareness and improving the lives of all individuals and families impacted by rare disease, including APBD.

The zebra, recognized as the official symbol of rare disease, embodies its uniqueness through its distinctive black and white stripes. Just as zebras’ stripes are never the same, individuals sharing an APBD diagnosis are unique individuals with wishes, goals, dreams, and plans. 

Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse – but united in purpose. Visit the website, for all of the events and materials produced for this special day.