Join APBD Tour de Friends for the 2024 Million Dollar Bike Ride for Rare Disease Research.


Contact Us

If you have any questions, contact Anesa Kajtazovic, our Community Affairs Officer, at

Thank you for joining us — and paving the way for more APBD research!

* Donations made towards this campaign by you and our Board will be split between Penn Medicine’s Orphan Disease Center (ODC) research grants for APBD (80%) and the APBD Research Foundation’s patient advocacy and research programs (20%).