Skip to content
Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo
  • Understanding APBD
    • APBD 101
    • Signs and Symptoms
    • An Adult-Onset Form of GSD IV
    • Multiple Sclerosis… or APBD?
    • Testing Info
      • Diagnosed by pre-pregnancy screening
    • FAQs
  • About Us
    • Our Story
    • Timeline
    • Board Members
    • Scientific Advisory Board
    • Press
      • News Releases
      • APBD in the media
      • Legislative News
    • Blog
    • Contact us
    • Annual Reports
    • Career Opportunities
  • Living with APBD
    • Patient Registry Information
      • Columbia University APBD Registry (CAP)
      • APBDRF and NORD Natural History Study (FAN)
    • Personal Narratives
    • APBD Patient Chats
    • Family/Caregiver Chat Events
    • Doctor Database
    • Special Disability Aids
  • Research
    • Our Research Team
    • What We’re Working On
    • Webinars
    • Publications
    • Clinical Trial Considerations
  • Resources
    • Glossary
    • Videos
    • Links
    • Tool Boxes
    • Articles of Interest
    • Powerpoints
    • Newsletter Archive
    • Brochures
    • Volunteer
  • Get involved
    • Volunteer
  • Donate
  • Registry

Home » Living with APBD

APBD Research Foundation
info@APBDRF.org  Phone: 646.580.5610  
2257 East 63 Street, Brooklyn, NY 11234. A registered 501(c)3 non-profit organization Contributions are tax deductible to the extent permitted by law.

Please be advised that this web site exists as a source of general information only. Any reference to a product, process, service or company does not constitute an endorsement by the APBD Research Foundation. Please consult your physician before starting a new treatment, diet or fitness program.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
NORD and the NORD logo are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity.