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Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo
  • Understanding APBD
    • APBD 101
    • Signs and Symptoms
    • An Adult-Onset Form of GSD IV
    • Multiple Sclerosis… or APBD?
    • Testing Info
      • Diagnosed by pre-pregnancy screening
    • FAQs
  • About Us
    • Our Story
    • Timeline
    • Board Members
    • Scientific Advisory Board
    • Press
      • News Releases
      • APBD in the media
      • Legislative News
    • Blog
    • Contact us
    • Annual Reports
    • Career Opportunities
  • Living with APBD
    • Patient Registry Information
      • Columbia University APBD Registry (CAP)
      • APBDRF and NORD Natural History Study (FAN)
    • Personal Narratives
    • APBD Patient Chats
    • Family/Caregiver Chat Events
    • Doctor Database
    • Special Disability Aids
  • Research
    • Our Research Team
    • What We’re Working On
    • Webinars
    • Publications
    • Clinical Trial Considerations
  • Resources
    • Glossary
    • Videos
    • Links
    • Tool Boxes
    • Articles of Interest
    • Powerpoints
    • Newsletter Archive
    • Brochures
    • APBD and GSD IV Guideline
  • Get involved
    • Volunteer
  • Donate
  • Registry
APBD Research Foundation
info@APBDRF.org  Phone: 646.580.5610  
2257 East 63 Street, Brooklyn, NY 11234. A registered 501(c)3 non-profit organization Contributions are tax deductible to the extent permitted by law.

Please be advised that this web site exists as a source of general information only. Any reference to a product, process, service or company does not constitute an endorsement by the APBD Research Foundation. Please consult your physician before starting a new treatment, diet or fitness program.

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NORD and the NORD logo are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity.

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