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Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo Adult Polyglucosan Body Disease Research Foundation (APBDRF) Logo
  • Understanding APBD
    • APBD 101
    • Signs and Symptoms
    • Undiagnosed?
    • An Adult-Onset Form of GSD IV
    • Multiple Sclerosis… or APBD?
    • Testing Info
      • Undiagnosed?
    • FAQs
  • About Us
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    • Annual Reports
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  • Living with APBD
    • Participate in Research
    • Patient Registry Information
      • Columbia University APBD Registry (CAP)
      • APBDRF and NORD Natural History Study (FAN)
    • Personal Narratives
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  • Research
    • Our Research Team
    • What We’re Working On
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  • Get involved
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    • Support Your #1 Cause Through Your IRA
  • Donate
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APBD Research Foundation
A registered 501(c)3 non-profit organization. Contributions are tax deductible to the extent permitted by law.

Email: info@apbdrf.org
Phone: 646.580.5610
Mailing Address: APBD Research Foundation, 2257 East 63 Street, Brooklyn, NY 11234
Address for sending your charitable gift by mail: APBD Research Foundation, C/O Sharon Steinberg, 526 E. 20th Street, #1D, New York, NY 10009

Please be advised that this web site exists as a source of general information only. Any reference to a product, process, service or company does not constitute an endorsement by the APBD Research Foundation. Please consult your physician before starting a new treatment, diet or fitness program.

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NORD and the NORD logo are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity.

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