We are excited to share that a powerful narrative from Jeff Cooper, who was diagnosed with APBD in 2018 after several years of an MS misdiagnosis, has been published on KevinMD.com.

Read Jeff’s narrative

Jeff shared, “I have always been a performer at heart, starting with theater in school. For 28 years, I was a law professor at Indiana University in Indianapolis, and teaching gave me a captive audience. Beyond the classroom, I have always been passionate about music. I play the guitar and sing, and back in the day I was part of a band. I was also a distance runner and dreamed of completing a marathon. But over time, things began to change.” Read more…

We are incredibly grateful to Jeff for courageously sharing his experience. A special thanks to Dr. Kevin Pho, host of KevinMD.com, for providing a platform for this important story. With over 3 million monthly page views and over 250,000 followers on social media, this platform is vital for raising awareness about APBD!

Editor’s Note: A special thanks to Liv Palma, our Columbia University Genetic Counseling Intern, for drawing out this powerful narrative with Jeff Cooper.