Did you know there are over 7,000 rare diseases that are chronic, progressive, degenerative, and disabling? Of these rare diseases, 80% are genetic, including APBD.
Today is Rare Disease Day, the official international awareness-raising campaign for rare diseases which takes place on the last day of February each year. The main objective of the campaign is to raise awareness about rare diseases and their impact on patients' lives. On Rare Disease Day, we join millions of rare disease advocates -- around the world -- in amplifying the voices of people living with rare diseases.
On this special day, make sure to register for our upcoming virtual awareness-building event, ROOTS: Jewish Genes and Cuisine and invite your friends and family to join you.
You can register at betterunite.com/roots, where you can also place your bids on a great selection of silent auction prizes.
We look forward to seeing you on Tuesday!
All the best,
Lydia Dorsky
APBD Research Foundation Board Member
ROOTS Event Committee Chair
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Meet Our Honoree
Dr. Jesse Cedarbaum is professor, adjunct of neurology and psychiatry at Yale Medical School and founder and head of Coeruleus Clinical Sciences, LLC. Dr. Cedarbaum currently serves on the Foundation’s Pharmaceutical Development Committee, where he is helping to advance APBD research that will lead to future clinical trials. A neurologist and clinical trialist with a sub-specialty in Movement Disorders, he has spent the majority of his career as an executive in the pharmaceutical industry, leading teams in the areas of neurodegenerative, neuropsychiatric, and retinal disorders at Regeneron, Elan, Cytokinetics, and Bristol-Myers Squibb. Most recently, he led a team at Biogen that advanced three new compounds into the clinic for potential treatment of Parkinson’s disease.
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ROOTS: Jewish Genes and Cuisine
Join us on Tuesday, March 2nd at 7:30 pm ET (4:30 pm PT) for a special virtual event hosted by Ali Rosen, TV show host of Potluck with Ali.
The event will also feature Karen Grinzaid, Executive Director of JScreen Genetic Screening Program, as well as a special cooking demonstration by renowned chef and Jewish food expert Jeffrey Yoskowitz, author of The Gefilte Manifesto, who will share tales of the history of Ashkenazi cuisine while making a delicious dish with us.
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Thank you to our sponsors! |
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