2020 involved surprises we never could have anticipated. Nevertheless, our Foundation’s leaders moved the APBD fight forward in many wonderful and important ways.
o With international travel not happening but a new tool called Zoom introduced to us, we facilitated the Virtual APBD Biomarkers Workshop. Exchanges among researchers and patient advocates about potential biomarkers were vigorous and enlightening.
All of this positions us well for 2021, when we plan to bring our community of researchers, clinicians, patients, and support providers together for an international convening.
May 2021 bring strength, hope, and joy to you and your loved ones,
Harriet Saxe
Board Member
P.S. Please take a moment to save the date, March 2, 2021, for our upcoming virtual event, ROOTS: Jewish Genes and Cuisine. You’ll eat it up! Guaranteed!
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Top Articles of the Year
This year we have developed articles and resources with the help of contributing writers -- health care professionals and patient advocates in the field -- aimed at helping you better understand APBD and learn about the work being done in the field. The most-read articles of 2020 inspired hope, showed dedication, and shared the toll of APBD.
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2020 Year-End Giving
Contributions by supporters like you have helped us fund more than $1 million in research, build an APBD patient registry, uncover the second most common genetic mutation that causes APBD, establish a simple diagnostic saliva test, and so much more!
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Have you subscribed to our YouTube channel?
With thousands of views to date, our video collection includes everything from personal narratives to details about scientific research. It appeals to newbies, who just want the basics, as well as to researchers and physicians, who seek technical insights. By subscribing to our channel, you'll know when new videos are posted. We currently have 56 subscribers. Help us get to 100 subscribers by the end of 2020!
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