“NYC Marathon Fundraiser” meets “Giving Tuesday”
JoJo and Chloe finished the marathon and reached their goal. Won’t you help us reach ours?
$9,500 of the $30,000 Challenge Grant is still unmatched. Even a dollar donation sends a message to our other donors that you care, too. This link www.apbdrf.org will take you to the Foundation’s website where you can click on the orange button to make a quick donation. Thank you for caring! “We’re all in this together”
2017 APBD-NYC Marathon Fundraiser
________________________ ____________________
Moving Towards a Clinical Trial in Israel and the US
Our sister organization, the IsrAPBDf, is making progress in establishing a clinical trial in Israel. We in the US want to be proactive in moving the regulatory process forward here as well. Our goal: Establish a satellite of the Israeli trial -- or a parallel study -- so that North Americans who can’t make big trips can also opt in. To that end, we had a representative participate in the Rare Diseases Summit in Novato, California. The Summit was a highly interactive set of presentations and roundtables with pharmaceutical experts and experienced industry entrepreneurs.
________________________ ____________________
Fine Art Photography Auction Fundraiser
Thanks to:
Bob Costas for serving as M.C.
Robert Zuckerman for donating Limited Edition prints of his work
Robert Dienes for co-hosting
Lesley Goldwasser for providing the venue
Here are samples of the Zuckerman photos that made this event possible. Please email info@apbdrf.org for more information.