Table of Contents 
Gregory letter 
Follow @APBDRF Twitter 
Meet Dr Brent Fogel (Scientific Advisory Board Member)



Hi All:
It was recommended at our last board meeting that we send out a series of short newsletters. These are very busy times and a lot is going on - on a day-to-day basis with our researchers, with our community and the larger rare disease community. March's newsletter focuses on things you can do today in a very short period of time without spending a penny that will help us help you.

Wishing all of you the best,

Gregory Weiss
President of the APBDRF






This email is to notify you that APBD Research Foundation has been issued a $54.55 donation from the AmazonSmile Foundation as a result of AmazonSmile program activity between October 1 and December 31, 2014. The donation was deposited to your organization's bank account on or before Feb 15, 2015. It may take several days for the donation to appear in the account. 

You can increase your organization's donation potential by spreading the word about AmazonSmile. Sign in to and click on Marketing Tools to access customized online tools to let your supporters know that their AmazonSmile shopping can support Apbd Research Foundation. Here are several tactics that have been successful for participating organizations. 

Share this link: and ask your donors, volunteers, employees, and friends to bookmark this link so all their eligible shopping will benefit APBD Research Foundation. 
Send an email: In your next email newsletter to supporters, promote your AmazonSmile participation and include the link above.
Copy and paste this message in a Facebook post: When you shop at AmazonSmile, Amazon donates 0.5% of the purchase price to APBD Research Foundation. Bookmark the link and support us every time you shop.
Copy and paste this message in a Tweet: Amazon donates to Apbd Research Foundation when you shop @AmazonSmile. #YouShopAmazonGives

If you have any questions, please sign in to and click on the Help tab to see our FAQ topics. 

Thank you for your participation in the AmazonSmile program!  




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Dr. Brent Fogel a member of our Scientific Advisory Board

 Here at the opening reception for Robert Zuckerman's PORTRAITS exhibit at the Edgemar Center for the Arts in Santa Monica, CA on January 18, 2015, Dr. Brent Fogel of UCLA answers questions from attendees, including legendary actor Michael York, himself living with a rare degenerative condition. Audience members were engaged and grateful to be informed.

Continuing what was started with the APBD/KINDSIGHT(r) at the 92nd Street Y in New York in the Fall of 2014, Robert Zuckerman is dedicating his photography exhibits to helping raise awareness about Adult Polyglucosan Body Disease (APBD), and funding toward research for a cure.