Dear Friend,


On September 18-19, over 200 community members from 15 countries joined us for our APBD Scientific & Community Conference.  



The virtual event brought together stakeholders in the APBD community – researchers, healthcare providers, industry partners, and individuals and family members impacted by APBD – to connect, share, and accelerate APBD and allied diseases research.

View the agenda and speaker profiles here

Missed it? Watch the recordings here

From foundational research updates to advances in therapeutic development, to the urgent need for collaboration, and patients' lived experiences, this was an important meeting -- with promise-filled conversations on making APBD treatments a reality. 


We are thankful to our Scientific and Medical Advisory Board co-chairs, Dr. Jennifer Orthmann-Murphy and Dr. Felix Nitschke, our Conference Planning Committee members, our many guest speakers and moderators, our sponsors, and all of you who share in our mission. 

The APBD Research Foundation is dedicated to finding a cure for APBD, while improving the lives of those affected. Support our Mission

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