|
Your Chance to Contribute to Research: Urine Samples Needed from APBD Patients and Unaffected Family Members
Dr. Berge Minassian and Dr. Mayank Verma at the University of Texas Southwestern Medical Center are recruiting patients with APBD and their unaffected family members for a biomarker study. In this study, the researchers will be looking for specific urine biomarkers in the samples you provide. This study will be helpful with the design of future clinical trials.
The inclusion criteria include:
- genetic diagnosis of glycogen storage disorder such as APBD, or relatives of APBD patients who themselves don't have APBD
- 2 years - 85 years of age
The exclusion criteria include:
- active urinary tract infection
To learn more or to participate in this study, email Dr. Verma at mayank.verma@utsouthwestern.edu.
After completing the informed consent and a short survey, a box of supplies will be shipped to your home by the research team. The patient, and if possible family members, should collect the urine sample(s) and schedule a pre-paid pick up. No site visits are required.
| 
.jpg)
.jpg)
.gif){kind=small}
.jpg)
.png){kind=small}
.png){kind=small}